This time last year I was anxiously sitting on a hospital bed waiting for my laparoscopy, although I didn’t realise just how long I’d be waiting.
I arrived at 7:30am ready to be admitted, put on my hospital gown, compression socks and hospital underwear and waited in my bed on the ward. Throughout the morning I was visited by the anaesthesiology team and the surgery team to talk me through everything that was going to happen during surgery. I was also regularly checked on by a lovely team of nurses who really put me at ease and helped me throughout the day. Because I was the youngest on the ward and had no underlying conditions I was last in the queue for surgery, and didn’t end up going in until about 2pm.
What was meant to be a 15 minute surgery ended up lasting over two hours because they found so many adhesions. Waking up in recovery was when I finally received my confirmed diagnosis of endometriosis (even though I was a bit too spaced out on my medication to remember) after 7 years of trying to get an answer for my pain. It was a very bittersweet moment, on one hand I was right and I finally knew what was wrong with me, but on the other hand I knew enough about endometriosis to know that this was not a good thing and had some potentially bad implications.
So where am I one year later? Well my pain improved for the first 3-4 months after surgery and then started to go downhill again, which makes me think that I’ll end up back on the waiting list for an operation. After initially reducing the number of days I was on my period for, they are now more frequent than they have ever been (I’m talking 15-20 days out of every month) and even more unpredictable. I’m having to take days off work for the pain again, which is making me feel like a failure, because I’d finally got to the point where I didn’t need to do that anymore. It’s frustrating, but what is more frustrating is that I’m not the only one in this boat. Let’s just hope that one day (in the not too distant future) we won’t need multiple surgeries to help ease our pain.
My 1 year follow up appointment with my surgeon is this week – so fingers crossed!