After I had my surgery, so many people thought that was the end of it. I didn’t have endometriosis anymore, it was gone and I would be fine. I wouldn’t experience these symptoms, and I wouldn’t be so flaky when it comes to social commitments. How wrong were they?!
A common assumption about endometriosis is that it can becured after surgery, and logically it makes sense if you don’t know much about endo, especially if you had the adhesions removed during your surgery. If the adhesions are gone, then you shouldn’t have pain, right? Unfortunately not. The removal of the adhesions can help with pain levels, but it cant guarantee that there will be absolutely no pain.
This is because there is currently no cure for endometriosis, there are different methods for treating it and in some cases these treatments can significantly reduce the pain, prevent the regrowth of endometriosis and provide those diagnosed with more comfort.
When I spoke with friends after my surgery, the question I got from most of them was “so do you still have it, or is it gone?”. I got really frustrated with this question at one point, because yes, I still have endometriosis even though I have had the majority of it removed through surgery. It’s not something you can ever get rid of, and I think I reached my limit for answering this question. But then I thought about it from their point of view. The point of view of a person who hasn’t spent the last 6 years or so researching endometriosis. Think about tonsillitis or appendicitis, you have surgery toremove your tonsils or appendix and then you are no longer ill. Why would it not be the same with endometriosis? Looking at it from this angle meant that I had a lot more patience when explaining endo to people, and I think has really helped me in the long run.
I’ve made it very clear to people, that nothing to do with my endometriosis is off limits. They can ask me literally anything and I will do my best to answer it. The only real way to raise awareness about endometriosis is to educate people. The more open I am about it, the more people will talk to me and ask questions. If through this, just one personrealises that their period experiences are not normal, and seeks medical treatment then I will have made a difference that I am proud of.
So, this myth is unfortunately just that, there is no cure for endometriosis yet. But hopefully, if enough awareness is raised and researched conducted this may not always be the case.